“I thought I was the only one.”

That’s the sentiment echoed by thousands of women as they scroll through #PCOS on TikTok—a hashtag with over a billion views and growing. What was once a lonely, confusing diagnosis has now become a shared experience in the digital age.

From late-night hormone rants to daily supplement routines and tearful fertility wins, women are using TikTok not just to talk about Polycystic Ovary Syndrome, but to reclaim control over their health with humor, honesty, and a whole lot of sisterhood.

A digital sisterhood is being created. TikTok has become a hub for women with PCOS to connect and share their journeys. Creators like @jenna_bariatricbestie and @caileeeats discuss their struggles with symptoms such as weight gain, infertility, and hormonal imbalances, providing a sense of solidarity for viewers facing similar challenges. These personal stories foster a supportive environment where women can find understanding and encouragement.

Beyond storytelling, TikTok users share practical advice for managing PCOS. Dietitians like @vikahere offer guidance on nutrition and lifestyle changes, while others demonstrate exercise routines tailored for PCOS management. These tips empower women to take control of their health and make informed decisions about their care.

The popularity of PCOS-related content on TikTok underscores the need for greater awareness and understanding of the condition. By sharing their experiences, women are not only supporting each other but also educating the broader public and advocating for better healthcare resources.

In Nashville, healthcare professionals recognize the value of these online communities. Dr. Michelle Roach, an OB/GYN at Vanderbilt University Medical Center, acknowledges the importance of patient-led support networks:

“There’s no single test we use to make a diagnosis. And symptoms can be variable among patients. Many patients have irregular periods, abnormal hair growth, infertility or struggle with their weight. However, about 15-20% of patients are normal or thin.”

As women continue to share their stories and support each other on platforms like TikTok, they are not only finding solace but also driving change in how PCOS is understood and treated.

Author: Tala Shatara